Health Issues with My Ari

My poor little Ari.
Life has been so incredibly stressful, overwhelming and heavy.

About a month to a month and a half ago I thought Ari was just tired as his eyes started rolling back.

I giggled and picked him up, but once I picked him up he was not responsive to me at all.
I was talking to him and he was just kind of limp and his eyes kept rolling back.
I was worried to an extent, but still chalked it up to him being tired.

We went home and took a nap.

It didn't happen again for a while, but since then I have counted about 6 more occasions when he would have an "episode".

I made a doctors appointment and started doing my own research on what could cause this.
Based on what I read and videos I found on youtube I thought it looked a lot like "absence seizures".
When I took him to the doctor I never said what I thought it could be, I just told her what was happening.
Sure enough she said it sounds like he is having absence seizures.

They measured him and his percentile in height has been dropping as if he just stopped growing.
They did a blood panel and when the results came back the doctor called me with them.

I knew as soon as she called that something was wrong because the nurses usually call.
She talked about everything that came back normal, but then told me that his blood platelets are elevated (could just be from the stomach bug that was going around), his protein levels are low and that she thinks he may have Renal Tubular Acidosis (RTA) which is basically a kidney malfunction. It is when the kidneys don't filter things properly and that could be what is causing him to not be growing the way he is supposed to.

They are considering him to be a failure to thrive case :(

Our pediatrician sent a referral to Children's Hospital. We have to wait for them to call us and then there are a lot of things we need to do in order to get seen by the specialists.

We need to see a pediatric neurologist and the growth specialists.

So needless to say, I am extremely tired and worried and overwhelmed.

There are also other things going on in the family that have contributed to all of this stress.

Please keep my little man in your prayers. I just want him to be happy and healthy.




I seriously LOVE when he crosses his legs while sleeping!





































For Reference, what a absence seizure looks like and this is what Ari does!

Christmas Photos!

"His Nose Is Falling Down" #NaBloPoMo

Towards the start of this school year (a couple weeks in) I had been taking my kids to breakfast at school. One day we were just minding our own business, kids eating their breakfast and me just hanging out with them.

This kid then made some comment about Ari's nose.
Ari had a cold at the time that this all started so I thought maybe he was just grossed out by Ari's runny nose (I was wiping it continually because it grosses me out too when kids have boogers all over).

Well the same kid has continued to make comments about Ari and it has been weeks. I have just been ignoring it hoping the kid would finally just give it up. I mean, ignoring it is what you are supposed to do right?

Wrong.

Today I walked in and immediately I hear "Oh no! It's the 'something inaudible' baby". I ignored it... While the two oldest were eating, I was talking with Mrs. C (One of the teachers who has worked with Judah and Ora) and the kid says "That baby is so disgusting!".

Mrs. C was appalled and with a look of shock on her face she said "What did you just say?? WHY would you say something like that?"

Kid replies "well, because his nose is like, falling down..."

Mrs. C and I were equally confused as to what he was talking about and what he meant. She asked him "What are you talking about? I think he is a beautiful baby!"

Kid says "well his nose........... uh...... um...... I really don't know."

Well.. DUH... you don't know, you are talking nonsense!

I guess even though Ari is a baby, not a student and has no idea what is going on in the school takes it seriously as it lines up with their anti-bullying.



In other news, this stomach flu/bug has been kicking our butts! My word.
Thanksgiving day Jonathan was sick. He stayed in bed all day.
Thanksgiving night Judah and Ari got it.
I was feeling a little off Friday-Sunday a little nauseated and what not.
Monday I got pretty bad. I thought for sure I had hit the worst of it then.

Boy was I wrong, Tuesday my stomach was cramping so bad I felt like someone was ripping my intestines out. I had the really gross parts of the stomach flu. I had chills, my muscles and joints just ached and my joints had occasional shooting pains in the joints.

I could barely move. It took every little ounce of energy I had just to get to the bathroom on time.

I was not comfortable unless I was laying down, but I was running to the restroom so often I didn't lay much in the beginning of the day.
OH YEAH!! AND Jonathan was at work and I had all three kids home (Judah was sick and it was impossible to get O to school.)

Wednesday all was well. Everything was returning to normal.

Again I was wrong.
Today Jonathan came home early because he is getting it a second time and Ora was home sick.

It feels like it's NEVER going to end!


Sleepy man.


Cute BEBE foot.


I love it when he crosses his sweet chunky monkey legs while sleeping!


And my sickies today :(

Seven Years Ago... #NaBloPoMo

Seven years ago today my dad walked me down the isle and gave me away.



Seven years ago today I was a bride to be...



Seven years ago today I left my parents to cleave to my husband...



Seven years ago today we gathered with friends and family to celebrate our union...



Seven years ago today we exchanged vows....



Seven years ago today we exchanged rings...



Seven years ago I became Mrs. Jonathan David Terbush...








Thank you Jonathan for putting up with me for the past seven years.
I know we have had our up and downs.
It seems we have had more downs than ups, but we have fought our way through the years and today we celebrate one more year of being married.

This Weekend I... #NaBloPoMo

This Weekend I... found my camera battery charger! :) I didn't get around to taking any photos with it yet!

This Weekend I... got a new coffee maker, coffee and creamer from my mom!

This Weekend I... found out I lost two more pounds!

This Weekend I... stuck to my diet every day except Friday when I went a little overboard on some delicious cheese steak pizza!

This Weekend I... got pinched by my sons hermit crab and cried while trying to figure out how to get him off my finger. That stuff HURTS!



This Weekend I... uploaded many of my kids artwork pieces and backed them up on several different sites :)


Awesome Robot By: Judah

My very favorite, he drew my favorite Doctor from "Doctor Who" and the Tardis!
By: Judah


Me being pinched by the crab By: Ora (Judah wrote the words)

Pumpkin By: Ora

This Weekend I... had lima beans and ham hocks for the first time in a LONG time and it was delicious!

This Weekend I... wore flip flops and a t-shirt while everyone else was bundled up.




This Weekend I... signed up on formspring.com so PLEASE ASK ANYTHING YOU WOULD LIKE, if you want to remain anonymous just check the "hide name box"!



This Weekend I... attempted the 10 on 10 challenge and ended up taking a very long nap so I gave up after two pictures!




This Weekend I... couldn't tell what my daughter was saying about my hair and why she needed to brush it. I thought she was saying the FOUR letter word that starts with "F". Daddy corrected me through the video!



This Weekend I... enjoyed watching Ariah playing in the box train that his big brother made!




This Weekend I... listened as my husband read parts of "Hitchhikers Guide to the Galaxy" to Judah, so if you were wondering if this was a posed shot, it wasn't. I snapped it while they were reading!