Saturday, December 8, 2012

Health Issues with My Ari

My poor little Ari.
Life has been so incredibly stressful, overwhelming and heavy.

About a month to a month and a half ago I thought Ari was just tired as his eyes started rolling back.

I giggled and picked him up, but once I picked him up he was not responsive to me at all.
I was talking to him and he was just kind of limp and his eyes kept rolling back.
I was worried to an extent, but still chalked it up to him being tired.

We went home and took a nap.

It didn't happen again for a while, but since then I have counted about 6 more occasions when he would have an "episode".

I made a doctors appointment and started doing my own research on what could cause this.
Based on what I read and videos I found on youtube I thought it looked a lot like "absence seizures".
When I took him to the doctor I never said what I thought it could be, I just told her what was happening.
Sure enough she said it sounds like he is having absence seizures.

They measured him and his percentile in height has been dropping as if he just stopped growing.
They did a blood panel and when the results came back the doctor called me with them.

I knew as soon as she called that something was wrong because the nurses usually call.
She talked about everything that came back normal, but then told me that his blood platelets are elevated (could just be from the stomach bug that was going around), his protein levels are low and that she thinks he may have Renal Tubular Acidosis (RTA) which is basically a kidney malfunction. It is when the kidneys don't filter things properly and that could be what is causing him to not be growing the way he is supposed to.

They are considering him to be a failure to thrive case :(

Our pediatrician sent a referral to Children's Hospital. We have to wait for them to call us and then there are a lot of things we need to do in order to get seen by the specialists.

We need to see a pediatric neurologist and the growth specialists.

So needless to say, I am extremely tired and worried and overwhelmed.

There are also other things going on in the family that have contributed to all of this stress.

Please keep my little man in your prayers. I just want him to be happy and healthy.


I love it when he crosses his sweet chunky monkey legs while sleeping!!!
I seriously LOVE when he crosses his legs while sleeping!

My silly goober.

My babies coloring

My sickies

Cute baby hand


He grabbed a magazine and "read" it!


Cute baby girl in her new ph's!

This dude has new pj's too but he doesn't like to sleep in clothes. Says he gets too hot!

Yep! You guessed it! Little man has new pj's too!

Best friends! I love these girls so much!!!



Little piggies

Her friend Sravika brought her a Krispy Kreme hat!

My Ari. My baby. My gorgeous boy. My little love.

For Reference, what a absence seizure looks like and this is what Ari does!

1 comment:

Jennifer Kay said...

I just read another post this week about a mother who they told her child had been "failing to thrive" and she was saying she hated the term but was not worried because her older daughter was a very tiny girl as well so she's certain his low weight was nothing to be concerned with. Why do they use those scary terms with mothers!??!?!

Prayers for your little guy.