Health Issues with My Ari

My poor little Ari.
Life has been so incredibly stressful, overwhelming and heavy.

About a month to a month and a half ago I thought Ari was just tired as his eyes started rolling back.

I giggled and picked him up, but once I picked him up he was not responsive to me at all.
I was talking to him and he was just kind of limp and his eyes kept rolling back.
I was worried to an extent, but still chalked it up to him being tired.

We went home and took a nap.

It didn't happen again for a while, but since then I have counted about 6 more occasions when he would have an "episode".

I made a doctors appointment and started doing my own research on what could cause this.
Based on what I read and videos I found on youtube I thought it looked a lot like "absence seizures".
When I took him to the doctor I never said what I thought it could be, I just told her what was happening.
Sure enough she said it sounds like he is having absence seizures.

They measured him and his percentile in height has been dropping as if he just stopped growing.
They did a blood panel and when the results came back the doctor called me with them.

I knew as soon as she called that something was wrong because the nurses usually call.
She talked about everything that came back normal, but then told me that his blood platelets are elevated (could just be from the stomach bug that was going around), his protein levels are low and that she thinks he may have Renal Tubular Acidosis (RTA) which is basically a kidney malfunction. It is when the kidneys don't filter things properly and that could be what is causing him to not be growing the way he is supposed to.

They are considering him to be a failure to thrive case :(

Our pediatrician sent a referral to Children's Hospital. We have to wait for them to call us and then there are a lot of things we need to do in order to get seen by the specialists.

We need to see a pediatric neurologist and the growth specialists.

So needless to say, I am extremely tired and worried and overwhelmed.

There are also other things going on in the family that have contributed to all of this stress.

Please keep my little man in your prayers. I just want him to be happy and healthy.




I seriously LOVE when he crosses his legs while sleeping!





































For Reference, what a absence seizure looks like and this is what Ari does!

"His Nose Is Falling Down" #NaBloPoMo

Towards the start of this school year (a couple weeks in) I had been taking my kids to breakfast at school. One day we were just minding our own business, kids eating their breakfast and me just hanging out with them.

This kid then made some comment about Ari's nose.
Ari had a cold at the time that this all started so I thought maybe he was just grossed out by Ari's runny nose (I was wiping it continually because it grosses me out too when kids have boogers all over).

Well the same kid has continued to make comments about Ari and it has been weeks. I have just been ignoring it hoping the kid would finally just give it up. I mean, ignoring it is what you are supposed to do right?

Wrong.

Today I walked in and immediately I hear "Oh no! It's the 'something inaudible' baby". I ignored it... While the two oldest were eating, I was talking with Mrs. C (One of the teachers who has worked with Judah and Ora) and the kid says "That baby is so disgusting!".

Mrs. C was appalled and with a look of shock on her face she said "What did you just say?? WHY would you say something like that?"

Kid replies "well, because his nose is like, falling down..."

Mrs. C and I were equally confused as to what he was talking about and what he meant. She asked him "What are you talking about? I think he is a beautiful baby!"

Kid says "well his nose........... uh...... um...... I really don't know."

Well.. DUH... you don't know, you are talking nonsense!

I guess even though Ari is a baby, not a student and has no idea what is going on in the school takes it seriously as it lines up with their anti-bullying.



In other news, this stomach flu/bug has been kicking our butts! My word.
Thanksgiving day Jonathan was sick. He stayed in bed all day.
Thanksgiving night Judah and Ari got it.
I was feeling a little off Friday-Sunday a little nauseated and what not.
Monday I got pretty bad. I thought for sure I had hit the worst of it then.

Boy was I wrong, Tuesday my stomach was cramping so bad I felt like someone was ripping my intestines out. I had the really gross parts of the stomach flu. I had chills, my muscles and joints just ached and my joints had occasional shooting pains in the joints.

I could barely move. It took every little ounce of energy I had just to get to the bathroom on time.

I was not comfortable unless I was laying down, but I was running to the restroom so often I didn't lay much in the beginning of the day.
OH YEAH!! AND Jonathan was at work and I had all three kids home (Judah was sick and it was impossible to get O to school.)

Wednesday all was well. Everything was returning to normal.

Again I was wrong.
Today Jonathan came home early because he is getting it a second time and Ora was home sick.

It feels like it's NEVER going to end!


Sleepy man.


Cute BEBE foot.


I love it when he crosses his sweet chunky monkey legs while sleeping!


And my sickies today :(

Sick Again #NaBloPoMo

What an awful time to get the stomach flu...
I have had a hard time the past couple days with feeling sick...
Today was by far the worst. Judah was sick too :( He is already feeling better though, thank goodness. I hate seeing my babies sick!